Rachel Giles

President, VHL Europa

Rachel was appointed Associate Professor of Internal Medicine at the University Medical Center Utrecht in 2006. She came from a family with an inherited tumour syndrome and has been active in advocacy for patients with inherited kidney cancer since 2003. She has been chair of the Dutch VHL Organisation since 2009, and was Chair/CEO of the International Kidney Cancer Coalition (IKCC) 2014-2024. She has been President of VHL Europa (vhl-europa.org) since 2023. Her day job is as Patient Engagement Director at Patvocates.net.

Updated: June 2026