Annalisa Trama

Deputy Coordinator

JANE-2 Joint Action & Head of Evaluative Unit, Epidemiology and Data Science Department

Fondazione IRCSS Istituto Nazionale dei Tumori Milan

Her research activities focus on rare cancers, adolescent and young adult cancers and cancer networks. She is an expert in population-based research, including population-based cancer registries and administrative datasets. She was a founder of RARECARE (surveillance of rare cancers in Europe), which proposed a definition for rare cancer. She was the founder of RARECAREnet Asia, a collaboration between European and Asian population-based cancer registries (CRs) on rare cancers. In the area of rare cancers, she co-coordinated the Joint Action on Rare Cancers (JARC), carried out between 2016 and 2019 within the framework of the Third Health Programme of the European Union (EU) with 34 partners and 18 EU Member States. She coordinates the clinical registry of EURACAN, the European Reference Network on rare adult solid cancers. She coordinates the Joint Action on Network of Expertise (JANE2), including 124 partners from 32 countries. She was a founder of the first Italian adolescent and young (AYA) cancer survivor cohort, and she coordinates the Steering Committee of this cohort. She is a member of the Scientific Coordination of EUROCARE (surveillance of cancer patients in Europe). She is PI of national and international projects exploiting secondary use of real-world data (e.g. electronic health records, administrative databases, clinical registries, population-based registries) and use of innovative solutions (e.g. data fusion; AI approach for defining causal relationships; AI solution to support interoperability of data sources).

She is (co)author of more than 100 papers in peer-reviewed medical journals.

Updated: June 2026