EUonQoL

Project Duration: January 2023 to January 2027

EUonQoL aims to develop, pilot and validate the EUonQoL-Kit, a patient-driven, unified system for the assessment of quality of life (QoL) based on evaluations and preferences of cancer patients and survivors. The EUonQoL-Kit will be developed from a patient perspective, administered digitally, available in the EU27 and Associated countries languages, and applicable in future, periodic surveys to contribute to the EU’s Cancer Mission.

This 48 months project, led by Istituto Nazionale Tumori (INT) will develop the EUonQoL-Kit that will be validated in a pilot survey using digital data collection within month 24 of the project. A total of 4,000 cancer patients and survivors will be enrolled through a network of EU cancer centers.

EUonQoL is composed by research institutions, cancer centres, as well as scientific, professional, and patient representative organisations, all with extensive experience and robust scientific background in the development of self-report QoL measures. This partnership fuels the ambition of EUonQoL to translate QoL information into future changes in cancer care policy and clinical practice.

ECO is supporting Work Package 2 on involvement of stakeholders and patients, with the objective to define the methodology and provide organizational support to accomplish the different project tasks through an active engagement of citizens and patient representatives, also including healthcare providers and administrators, researchers with expertise in QoL science and Data Science, industry, regulatory authorities, and policymakers. ECO is also supporting Work Package 9 on dissemination and communication activities to ensure engagement with the public, patients and other relevant stakeholders.

Browse the project website here.

This project has received funding from the European Union's Horizon Europe Research and Innovation Programme under Grant Agreement Nº 101096362.