Community 365 Roundtable: 'Taking a global lead on patient-reported outcome measurement. What’s holding Europe back?'

Patient-Reported Outcome Measures (PROMs) are essential tools for ensuring that cancer care, research and health decision-making reflect the experiences and priorities of patients.

 

By systematically collecting information directly from patients, PROMs can help improve clinical communication, identify symptoms and complications earlier, support better treatment decisions and strengthen the evidence base for patient-centred cancer care.

 

For this reason, on 13 July we will host a Community 365 Roundtable dedicated to PROMs. Co-chaired by Monica Racovita and Nicolò Battisti, the roundtable will bring together policymakers, clinicians, patient advocates, researchers and healthcare innovators to examine how Europe can move from fragmented implementation towards more systematic use of PROMs in cancer care.

13 July 2026 15:00 - 17:30 CEST

Online

 Apply for Registration

 C365 Roundtable on PROMS 2026 Landscape 1 v2

Progress in cancer care is about more than survival figures alone. It is also about understanding how people live during and after treatment, including their quality of life, physical functioning, emotional wellbeing, symptoms, treatment burden and the outcomes that matter greatly to patients and their quality of life. In this context, their feedback – expressed through PROMs – is essential.

Yet across Europe, the use of PROMs remains fragmented. Their implementation varies between countries, healthcare systems, research settings and policy processes, with persistent challenges around standardisation, digital infrastructure, clinical workflows, data interpretation and uptake by regulators, payers and decision-makers.

This discussion will then focus on three key areas: embedding PROMs in clinical practice, strengthening clinical trials through PROMs, and using them to inform policy and decision-making.

Participants will explore the practical barriers that continue to slow adoption, from administrative burden and workflow concerns to inconsistent standards, limited interoperability and uncertainty about how these should guide clinical, regulatory and health technology assessment processes.

The event will also consider existing European and international initiatives, examples of good practice, and the strategic choices needed to ensure that patient-reported outcomes become a stronger part of cancer care, research and health policy across Europe.

You can register now by using the form at the top of the page.

Speakers

  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
  • Lis Puga Research Manager of the EuroACT project
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University

Speakers

  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
  • Lis Puga Research Manager of the EuroACT project
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University
  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation Read Bio
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency Read Bio
  • Susanne Dieroff Hay President, Swedish Breast Cancer Association & Member of the Executive Board, EuropaDonna
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck Read Bio
  • Lis Puga Research Manager of the EuroACT project Read Bio
  • Gilliosa Spurrier-Bernard Board Member and Co-Chair of the Patient Advisory Committee, European Cancer Organisation & Vice-President, Melanoma Patients Network Europe Read Bio
  • Ian Tannock Emeritus Professor, Princess Margaret Cancer Centre and University of Toronto Read Bio
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University Read Bio
  • Jose Diaz Lead of Global Health Economics and Outcomes Research - Health Systems Economics & Value of Innovation, Bristol Myers Squibb
  • Francesco Fusco Director Health Economics and Outcomes Research (HEOR), Regeneron
  • Sahana Joish Oncology Market Access Lead at Bristol Myers Squibb

Speakers

  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
  • Lis Puga Research Manager of the EuroACT project
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University

 

15:00 – 15:10

Welcome and introductions

15:10 – 15:55

Embedding PROMs in Clinical Practice
Nicolò Battisti - Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
Francesco Fusco - Director Health Economics and Outcomes Research (HEOR), Regeneron

Janelle Yorke - Chair Professor of Nursing, Hong Kong Polytechnic University
Gilliosa Spurrier-Bernard - Board Member and Co-Chair of the Patient Advisory Committee, European Cancer Organisation & Vice-President, Melanoma Patients Network Europe

15:55 – 16:40

Strengthening Clinical Trials Through PROMs

Monica Racovita - Access and Policy Manager, Myeloma Patients Europe
Bernhard Holzner - Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
Lis Puga - Research Manager of the EuroACT Project
Ian Tannock - Emeritus Professor, Princess Margaret Cancer Centre and University of Toronto

16:40 – 17:25

Using PROMs to Inform Policy and Decision-Making

Nicolò Battisti - Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
Jose Diaz - Lead of Global Health Economics and Outcomes Research - Health Systems Economics & Value of Innovation, Bristol Myers Squibb
Sahana Joish - Oncology Market Access Lead, Bristol Myers Squibb

Susanne Dieroff Hay - President, Swedish Breast Cancer Association & Member of the Executive Board, EuropaDonna
Francesco Pignatti - Scientific Adviser for Oncology, European Medicines Agency

17:25 – 17:30

Event conclusions

Speakers

  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
  • Lis Puga Research Manager of the EuroACT project
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University

Speakers

  • Nicolò Battisti Board Member & Co-Chair of the Inequalities Network, European Cancer Organisation
  • Monica Racovita Access and Policy Manager, Myeloma Patients Europe
  • Francesco Pignatti Scientific Adviser for Oncology, European Medicines Agency
  • Bernhard Holzner Founder and Leader, Patient-Reported Outcome (PRO) working group, Medical University of Innsbruck
  • Lis Puga Research Manager of the EuroACT project
  • Janelle Yorke Chair Professor of Nursing, Hong Kong Polytechnic University